Identifying Outcomes and Filling Informational Gaps in Liver Transplantation: Results of a Multi-Stakeholder Qualitative Study and Related Learnings
Details
Reorientation toward Value-Based Health Care (VBHC) at VGH has expanded collection of patient outcomes, but measurement and core outcome set (COS) design persistently lacks patient engagement. We designed a qualitative interview study in collaboration with the Liver Transplant Integrated Practice Unit at VGH to identify a comprehensive list of outcomes relevant to liver transplant patients, their caregivers, and allied health professionals. In this talk, we describe the seven outcome themes important to these stakeholder groups, as well as the implementation of a patient guide to improve stakeholder information access during the liver transplant process. This healthcare information project—a result of accessory findings from the original study regarding patient access to information resources and support structures—helps to put research into practice and demonstrates how broad stakeholder engagement can produce actionable learnings that improve patient experience.
Please contact Pamela Lee for attendance details.
Don Griesdale, MD MPH
Critical Care Physician, Vancouver General Hospital
Associate Professor, Medicine | Anesthesiology, Pharmacology & Therapeutics
Director, Centre for Clinical Epidemiology & Evaluation,Vancouver Coastal Health Research Institute
Don is an anesthesiologist and intensive care physician at Vancouver General Hospital and Associate Professor in the Department of Anesthesiology, Pharmacology & Therapeutics at the University of British Columbia. Following his clinical training, he completed a Masters of Public Health in Quantitative Methods from the Harvard School of Public Health in 2008. His clinical and academics areas of interest include neurocritical care of patients with traumatic brain injury and hypoxemic ischemic brain injury following cardiac arrest. He is an active member of the Canadian Critical Care Trials Group. He is an co-investigator with his research partner and Principle Investigator, Dr. Mypinder Sekhon, on a CIHR Project Grant to help delineate pathophysiologic phenotypes in patients with hypoxic ischemic brain injury. Collaborating with Dr. Penny Brasher, he is the Principal Investigator on a 2023 /2024 Grant-in-Aid from the Heart and Stroke Foundation of Canada that will investigate the effect of VV-ECMO on cerebral blood flow in patients with ARDS.
Maja Segedi, MD MPH FRCSC FACS
Clinical Associate Professor
HPB & Liver Transplant Fellowship Program Director
Hepatobiliary & Pancreatic Surgery Vancouver General Hospital
Dr. Maja Segedi is a Clinical Assistant Professor in the UBC Department of Surgery specializing in HepatoPancreatoBiliary (HPB) and Liver Transplant Surgery, as well as Pancreatobiliary endoscopy. She is also a Co-Director of the HPB Fellowship Program at the Vancouver General Hospital.
She graduated from the University of Toronto, obtaining an MD degree in 2005, completed Residency training in General Surgery at the University of British Columbia in 2012 and a Master of Public Health, Quantitative Methods, at Harvard School of Public Health in 2009.
Her current interests lie in the use of machine learning as an adjunct for better decision-making for patients with liver malignancy. In addition, she has performed research and has numerous publications in the field of pancreas cancer, diagnostic assessment of pancreas cystic neoplasms, and ethical issues pertaining to pediatric liver transplantation.
Maya Vasdani
Research Assistant
Centre for Clinical Epidemiology and Evaluation
Maya Vasdani is a medical social scientist trained in qualitative approaches to health research. She earned her MA in Social Sciences from the University of Chicago and is broadly interested in using patient narratives to explore new perspectives on medical research. As a Research Assistant at C2E2, she works on similar topics as they relate to patient, provider, and caregiver experiences with liver transplantation.
Kira Dinim, BA
Student Librarian
UBC School of Information
The University of British Columbia Centre for Clinical Epidemiology and Evaluation
Kira is a second year Masters of Library and Information Studies student at the University of British Columbia’s School of Information. She holds a Bachelors in English Language and Literature also from UBC, where she focused on the rhetoric of science, technology, and medicine and explored the connections between gender and language. In her Master’s degree, Kira is working towards becoming a health sciences librarian; she has a specific interest in the emerging role of AI in health science research, in health mis- and dis-information, and in supporting information access for patients through patient-centred care and service. At the Centre for Clinical Epidemiology and Evaluation, she is building an accessible information resource for liver transplant patients, as well as assisting with general research and workshop presentations in her role as student librarian.